When Seconds Count

When many of us think of women who seek abortion the first one's we think of are those who find themselves with unwanted pregnancies. But some go into the doctors office for a routine exam on a very much wanted unborn child and as a grave look crosses the face of the ultrasound tech suddenly the world is a very different place. What happens next? Read this article and see some of the things that are being done to help families through the anguish and pain and the difficult decisions that have to be made.

Maria Keller was pregnant with her fourth child when she visited her doctor for a routine ultrasound at 20 weeks and was confronted with a moment all mothers dread. Maria and her husband, Joe, suspected something was not quite right when the ultrasound technician suddenly became quiet as she caught the first glimpses of the couple’s unborn child on the ultrasound screen. Then the technician abruptly exited the room, leaving Joe and Maria waiting for a few tense minutes before they were called in to see the doctor, who met them with a distressed look on his face. The ultrasound had revealed that their son, who would later be named James Nicholas, had osteogenesis imperfecta type II, a genetic bone disorder that causes collagen deficiency and defective connective tissue. Most babies diagnosed with OI Type II die within the first year of life of respiratory failure. “We were frankly told that we shouldn’t expect James Nicholas to survive birth, and that if he did survive to prepare for it to be a matter of seconds or maybe a couple of minutes, if we were blessed,” Joe told CWR in an interview. Until recently, it was not uncommon for delivery room doctors to seize babies with lethal anomalies immediately after birth. The belief was that it would be less traumatic for parents not to hold or even see babies who would likely die soon after birth. Today there is better recognition that deep maternal-fetal bonding can take place. But a strong anti-life bias persists against unborn and newborn babies with fatal conditions. There is broad public support for abortion of unborn children with profound disabilities. According to a 2006 poll by the National Opinion Research Center, 70 percent of Americans believe a woman should be able to obtain a legal abortion if there is a strong chance of a “serious defect” in the baby. Most unborn babies who receive a severe or fatal diagnosis are aborted. Cheri Shoonveld, a genetic counselor and spokesperson for the National Society of Genetic Counselors, estimates that only 10 to 20 percent of women carry to term after learning of a terminal prenatal diagnosis. In her book For the Love of Angela, Nancy Mayer-Whittington tells the story of her daughter Angela, who was diagnosed prenatally with Trisomy 18, a genetic disorder associated with a life expectancy of just 30 days. When Mayer-Whittington informed her doctor that she would be carrying Angela to term, he told her she was his first patient carrying a child with a life-threatening diagnosis to choose not to terminate. A woman’s decision whether to bring a baby to term or abort after a fatal diagnosis can hinge on whether alternatives to abortion are offered, and whether she has the necessary medical and emotional support from her husband and other family members, clergy, and health-care providers.

Read more: When Seconds Count: A look at what happens when parents continue a pregnancy after a fatal diagnosis